LOW-GRADE SEROUS OVARIAN CANCER IS

Serious

LGSOC Patient Impact Survey Results

We are pleased to present the results from the LGSOC Patient Impact Survey, a first-of-its-kind, multi-national survey among women diagnosed with low-grade serous ovarian cancer (LGSOC). More than 180 participants were surveyed across 10 countries to assess patient knowledge, burden and impact of disease and barriers to treatment.

LGSOC is a rare, highly recurrent ovarian cancer associated with slow but persistent tumor growth and a high mortality rate. This survey, administered by The Harris Poll and supported by Verastem Oncology, was conducted by leaders in the medical and advocacy communities to better understand and address the challenges of this rare and difficult to treat disease. Top global findings revealed:

  • Among those surveyed who experienced disease symptoms (81%), it took an average of nearly three years to get an accurate diagnosis.
  • Most report their path to diagnosis as difficult (75%) or frustrating (68%) – with many experiencing misdiagnosis (68%) or having their symptoms initially dismissed by a healthcare provider (66%).
  • When it comes to educating others about LGSOC, 87% want women to know that symptoms can be easily misdiagnosed as another disease, and 82% agreed that it’s important to listen to your body and seek medical attention as soon as possible.

To view survey details, including methodology, audience demographics, survey data and more, click the button below:

Hear from People with LGSOC

Learn more about the experiences people living with LGSOC share.

Key Survey Findings

1. A phase II study of VS-6766 alone or with defactinib in women with metastatic low-grade serous ovarian cancer that came back. Memorial Sloan Kettering Cancer Center. Accessed February 23, 2023. https://www.mskcc.org/cancer-care/clinical-trials/21-050

2. ARIMIDEX. Prescribing information. AstraZeneca Pharmaceuticals LP; 2010.

3. AROMASIN. Prescribing information. Pharmacia & Upjohn Company LLC; 2021.

4. AVASTIN. Prescribing information. Genentech, Inc.; 2021.

5. Carboplatin. Prescribing information. Teva Parenteral Medicines, Inc; 2011.

6. Cisplatin. Prescribing information. WG Critical Care, LLC; 2019.

7. Clinical trials: what you need to know. American Cancer Society, Inc. Updated August 18, 2020. Accessed February 23, 2023. https://www.cancer.org/treatment/treatments-and-side-effects/clinical-trials/what-you-need-to-know.html

8. Docetaxel. Prescribing information. Sandoz; 2012.

9. DOXIL. Prescribing information. Ortho Biotech Products, LP; 2007.

10. Doxorubicin hydrocholoride liposome. Prescribing information. Sun Pharmaceutical Ind. Ltd.; 2012.

11. ELIGARD. Prescribing information. Tolmar Pharmaceuticals, Inc.; 2019.

12. Femara. Prescribing information. Novartis Pharmaceuticals Corporation; 2020.

13. Han C, Bellone S, Zammataro L, Schwatrz PE, Santin AD. Binimetinib (MEK162) in recurrent low-grade serous ovarian cancer resistant to chemotherapy and hormonal treatment. Gynecol Oncol Rep. 2018;25:41-44. https://doi.org/10.1016/j.gore.2018.05.011

14. HYCAMTIN. Prescribing information. Novartis Pharmaceuticals Corporation; 2018.

15. Kisqali. Prescribing information. Novartis Pharmaceuticals Corporation; 2022.

16. Koselugo. Prescribing information. AstraZeneca Pharmaceuticals LP; 2021.

17. Lupron depot. Prescribing information. AbbVie Inc; 2014.

18. MEKINIST. Prescribing information. Novartis Pharmaceuticals Corporation; 2022.

19. MEKTOVI. Prescribing information. Array BioPharma Inc; 2020.

20. Paclitaxel. Prescribing information. Hospira, Inc.; 2021.

21. Paraplatin. Prescribing information. Bristol-Myers Squibb Company; 2010.

22. Platinol. Prescribing information. Bristol-Myers Squibb Company; 2010.

23. Soltamox. Prescribing information. Midatech Pharma US Inc.; 2018.

24. TAFINLAR. Prescribing information. Novartis Pharmaceuticals Corporation; 2022.

25. Taxol. Prescribing information. Bristol-Myers Squibb Company; 2011.

26. Taxotere. Prescribing information. sanofi-aventis U.S. LLC; 2020.

27. U.S National Library of Medicine. Search results: low-grade serous adenocarcinoma of the ovary. ClinicalTrials.gov. Accessed October 18, 2022. https://clinicaltrials.gov/ct2/results?cond=Low+Grade+Serous+Adenocarcinoma+of+Ovary&term=&cntry=&state=&city=&dist=